As a medical professional, you can submit your patient records for opinion to the Centres of Reference for Rare Diseases. The files received will be discussed at the next multidisciplinary consultation meeting of the centre.
For any request, please send your completed PCR forms by email to the address indicated for each disease (you can download the form(s) below so that you can complete them directly from your computer).
To send to : AMCarrillo@chu-grenoble.fr
Monthly RCP from 15pm à 17pm : 13/04/2020, 11/05/2020, 8/06/2020
To send to : firstname.lastname@example.org
RCP 1st et 3rd Wednesday of the month.
RCP sheet for autoimmune cytopenias
To send to :
– For adult files : email@example.com
Monthly RCP from 0:45pm to 2pm: 22/04/2020, 13/05/2020, 24/06/2020.
– For pediatric files: For your diagnostic or therapeutic questions, please complete the cytopenic RCP file and return it before the day before the RCP 2:00 pm by email to the CEREVANCE: firstname.lastname@example.org
Monthly RCP from 1pm to 2pm : 7/04/2020, 5/05/2020, 2/06/2020
RCP sheet auto-immunes cytopenias (regional)
To be sent to the reference or competence centre of the region
RCP sheet for Histiocytosis
For adult files : email@example.com, firstname.lastname@example.org
For pediatric files : email@example.com
Monthly RCP (1st monday of the month, calendar here) : 6/04/2020, 4/05/2020, 8/06/2020, 6/07/2020
RCP sheet for chronic neutropenia and LGL Proliferations
To send to : firstname.lastname@example.org and to email@example.com
Monthly RCP from 4pm to 6pm : 23/04/2020, 28/05/2020, 18/06/2020, 9/07/2020
To send to : firstname.lastname@example.org
RCP sheet for Blackfan-Diamond anemia (ongoing)
To send to : email@example.com
RCP sheet for Common Immune Deficiencies Variables (ongoing)
To send to : firstname.lastname@example.org
RCP every two months
RCP sheet for Inherited immune deficiencies