Documentation

National Protocols for Diagnosis and Care – Recommendations

Orphanet Emergency / Disability files

Orphanet Emergency Files Kinin angioedema   Orphanet Handicap filesOrphanet Emergency Files Kinin...

MaRIH magazines

Horizon Hémato magazine December 2016 – Focus on the MaRIH network, its...

Therapeutic patient education programs

Sorry, this entry is only available in French. For the sake of...

Useful Documentation for Patients

Revues Post-ASH

Le regard des jeunes hématologues et internistes sur les maladies rares immuno-hématologiques...

Expert-Witnesses Videos

Audio Podcasts

The MaRIH Immuno-haematological Rare Disease Health Channel is available on the digital...

Transition from Pediatric to Adult Service

A large proportion of rare immuno-hematological diseases diagnosed during childhood justify a...

Booklet “Rare Diseases healthcare networks”

Find the booklet “Rare Disease Healthcare networks” ! Find the July 2019...