Documentation

National Protocols for Diagnosis and Care – Recommendations

Orphanet Emergency / Disability files

Orphanet Emergency Files Kinin angioedema   Orphanet Handicap files

MaRIH magazines

Horizon Hémato magazine December 2016 – Focus on the MaRIH network, its...

Therapeutic patient education programs

Sorry, this entry is only available in French. For the sake of...

Useful Documentation for Patients

Aplastic anemia Information booklet for patients with bone marrow aplasia  

Revues Post-ASH

Le regard des jeunes hématologues et internistes sur les maladies rares immuno-hématologiques...

Expert-Witnesses Videos

Audio Podcasts

The MaRIH Immuno-haematological Rare Disease Health Channel is available on the digital...

Transition from Pediatric to Adult Service

A large proportion of rare immuno-hematological diseases diagnosed during childhood justify a...

Booklet “Rare Diseases healthcare networks”

Find the booklet “Rare Disease Healthcare networks” ! Find the July 2019...