Orphanet Emergency / Disability files Orphanet Emergency Files Kinin angioedema Orphanet Handicap files
Therapeutic patient education programs Sorry, this entry is only available in French. For the sake of...
Useful Documentation for Patients Aplastic anemia Information booklet for patients with bone marrow aplasia
Revues Post-ASH Le regard des jeunes hématologues et internistes sur les maladies rares immuno-hématologiques...
Audio Podcasts The MaRIH Immuno-haematological Rare Disease Health Channel is available on the digital...
Transition from Pediatric to Adult Service A large proportion of rare immuno-hematological diseases diagnosed during childhood justify a...
Booklet “Rare Diseases healthcare networks” Find the booklet “Rare Disease Healthcare networks” ! Find the July 2019...
22September2021 Nouvelle diffusion de RCP sur MaRIH.fr : « Manifestations Systémiques des Hémopathies » Sorry, this entry is only available...
02August2021 Information from CEREDIH, PERMEDES, IRIS relating to persistent tensions in the supply of immunoglobulins in patients with Hereditary Immune Deficits The supply of Ig in France...
02/10/2021 Réunion annuelle patients/médecins associations de patients pour les angioedèmes à kinines AMSAO Paris
08/10/2021 Réunion annuelle du centre de référence maladies rares des cytopénies auto-immunes de l’adulte (CERECAI) Hôpital de la Pitié Salpétrière
08/10/2021 Journée annuelle du centre de référence des aplasies médullaires Paris et en visioconférence
