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The industry
Presentation of the sector
Missions
Gouvernance
Centres of Reference for Rare Diseases
Find a specialist
Research/diagnostic laboratories
Patient associations
Scientific societies
Others French Healthcare Networks for Rare diseases
Partners
Pathologies
Primary amyloidosis and others immunoglobulin deposition diseases
Gammapathies Monoclonales De Signification Clinique (MGCS) : Atteintes Cutanées
Bradykinin-mediated angioedema
Acquired And Inherited Aplastic Anemia
Acquired and inherited aplastic anemia
Diamond-Blackfan anemia
Paroxysmal nocturnal hemoglobinuria
Fanconi anemia
Autoimmune cytopenias
Autoimmune hemolytic anemia
Immune thrombocytopenic purpura
Evans syndrome
Primary immunodeficiency
Histiocytosis
Histiocytosis
Maladie d’Erdheim-Chester
Castleman disease
Mastocytosis
Thrombotic microangiopathy
Chronic neutropenia
LGL proliferation
Hypereosinophilic syndrome
Care
Expert opinion RCP
Request for expert opinion on genomic RCP
Orphanet Emergency / Disability files
Therapeutic patient education programs
Transition from Pediatric to Adult Service
Find a specialist
Training
MOOC MaRIH
University qualification « Immunohematology and Internal Medicine »
UQ « MAT and other immunological diseases of hemostasis »
Clinical quizzes
MaRIH magazines
Research
Ongoing clinical trials
MaRIH Research Grant
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Medico-social area
Orphanet booklet "Living with a rare disease in France".
Orphanet booklet “Living with a rare disease in France”.
https://www.orpha.net/orphacom/cahiers/docs/FR/Vivre_avec_une_maladie_rare_en_France.pdf
