In response to the national call for proposals for the accreditation of “CRMR” centers of reference for the management of rare diseases, MaRIH supported 12 applications in January:
– Renewal of certification for 9 centers:
- Autoimmune cytopenias in children “CEREVANCE” coordinated by Pr Perel (Bordeaux)
- Adult autoimmune cytopenias “CeReCAI” coordinated by Pr Godeau (Créteil)
- Medullary aplasia coordinated by Pr Peffault de Latour (Paris)
- Histiocytoses coordinated by Pr Tazi (Paris)
- Mastocytoses coordinated by Pr Hermine (Paris)
- Thrombotic microangiopathies by Pr Coppo (Paris)
- Angioedemas “CREAK” coordinated by Pr Bouillet (Grenoble)
- Inherited immune deficiencies “CEREDIH” coordinated by Pr Fischer (Paris)
- Primary amyloidosis and other monoclonal immunoglobulin diseases coordinated by Pr Jaccard (Limoges)
– And the proposal of 3 new centers:
- Castleman’s disease coordinated by Pr Oksenhendler (Paris)
- Chronic neutropenia coordinated by Dr Donadieu (Paris)
- Hypereosinophilic syndrome coordinated by Dr Kahn (Suresnes).
The official list of candidates selected by the Ministry of Health is expected in May-June 2017.