REPLAY – Journée thématique & génétique MaRIH du 24 novembre
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Disponibilité des vidéos de la 6ème journée nationale d’information des patients et de leurs proches
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Nouveau Site Web • CREAK
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12e Journée Régionale Interactive MaRIH “Normandie” en images
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16e Journée Annuelle Du Centre De Référence Des Microangiopathies Thrombotiques
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Première Édition du Week-End Sur Les Maladies Rares Immuno-hématologiques
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Retour En Images – Journée De La Maladie De Castleman
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Journée Annuelle des Aplasies Médullaires
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Le MOOC MaRIH fait peau neuve
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Ouverture des candidatures aux internes pour l’ASH 2023 !
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Journée internationale de la maladie de Castleman – association APAMC
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Replay de la 9ème journée nationale MaRIH – 2023
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Interviews MaRIH à l’EHA 2023
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Nouvelle vidéo expert-patient sur l’amylose AL
Le Pr Arnaud Jaccard (centre de référence maladies rares) et Barbara (diagnostiquée à 49ans) vous explique ce qu’est...
Les protocoles nationaux de diagnostic et de soins sur les Déficits immunitaires héréditaires et la maladie de Shwachman-Diamond sont disponible
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Course des Héros 2023
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Le protocole national de diagnostic et de soins sur les Aplasies médullaires 2023 est disponible
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Association IRIS : Course Connectée
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MOOC “From Lab to Clinic: Translational Research for Rare Diseases”
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Nouveau protocole national de diagnostic et de soins publié sur l’Amylose AL
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webinaire sur le Purpura Thrombopénique Idiopathique
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Mise à jour du MOOC MaRIH
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Journée internationale des maladies rares / Rare Disease Day !
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Nouveau calendrier 2023 de la filière MaRIH !
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