STEERING COMMITTEE
The steering committee convenes every other Thursday and includes a representative from each centre of reference and two representatives for associations and diagnosis and/or research laboratories (elected for a year).
- CEREVANCE : Dr Nathalie Aladjidi, Pr Guy Leverger & Dr Thierry Leblanc
- CeReCAI : Pr Bertrand Godeau & Pr Marc Michel
- CR AM : Pr Régis Peffault de Latour, Dr Flore Sicre de Fontbrune & Dr Thierry Leblanc
- CNR MAT : Pr Paul Coppo, Pr Eric Rondeau & Pr Fadi Fakhouri
- CR H : Pr Abdellatif Tazi, Dr Jean Donadieu & Pr Julien Haroche
- CEREMAST : Pr Olivier Hermine & Dr Julien Rossignol
- CEREDIH : Pr Despina Moshous, Dr Nizar Mahlaoui & Pr Claire Fieschi
- CR AL : Pr Arnaud Jaccard, Pr Frank Bridoux, Dr Vincent Javaugue & Dr Estelle Desport
- CREAK : Pr Laurence Bouillet & Dr Isabelle Boccon-Gibod
- CR NC : Dr Jean Donadieu, Pr Thierry Lamy & Dr Flore Sicre de Fontbrune
- CRMdC : Pr Eric Oksenhendler, Pr Claire Fieschi & Dr David Boutboul
- CEREO : Pr Jean-Emmanuel Kahn & Dr Guillaume Lefèvre
- Research and/or diagnosis laboratories: Pr Jean-François Emile & Dr Caroline Kannengiesser
- Patient associations : Michel Raguet (AMSAO)
SCIENTIFIC AND STRATEGIC COMMITTEE
The scientific and strategic committee includes a representative from each centre and one representative for laboratories. It is chaired by Pr Marc Michel.
MANAGEMENT PLATFORM
The management platform comprises :
- the coordinator : Pr Régis Peffault de Latour
- the network project manager : Amélie Marouane
- the communication officer : Alice Carneau
- the project officer (on database and expert opinion) : Endjy Bhagouandine & Alexandre TA
RESEARCH COORDINATION
The research project manager I. Brindel coordinate and push forward the research activity of the member centres.
Her actions:
– Identify calls
– Watching out for regulations
– Helping new projects