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    Accueil / Documentation / Documentation utile aux patients

Useful Documentation for Patients

 

 


Documentation utile aplasies médullaires

Sorry, this entry is only available in French. For the sake of...

Useful Purpura Thrombopenic Immunological Documentation

2019 edition of the booklet “Sport and ITP: have immune thrombocytopenic purpura...

Useful documentation on Fanconi diseases

Recommendations for diagnosis and follow-up, for the use of families and doctors...

Useful Documentation on Paroxysmal Nocturnal Hemoglobinuria

Travelling in Europe with an HPN

Useful documentation on Immune deficiencies

Questions and answers related to the manufacture and composition of products, injection...

Useful documentation on Mastocytosis

Booklet “100 questions – 100 answers” on mastocytosis

Useful Documentation on Angioedema

Booklet “Hereditary Angioedema in questions.”

Useful documentation on amyloidosis

Booklet “Getting to know amyloidosis better”


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News
09August2023
Le MOOC MaRIH fait peau neuve

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31July2023
Ouverture des candidatures aux internes pour l’ASH 2023 !

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18July2023
Replay de la 9ème journée nationale MaRIH – 2023

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See all the news
News
29/09/2023
Journée nationale du centre de référence des syndromes hyperéosinophiliques (CEREO)

Maison de l'Amérique latine, Paris

Du 03/10/2023 au 04/10/2023
RARE 2023: les rencontres des maladies rares

RARE 2019 : les rencontres des...

Du 03/10/2023 au 06/10/2023
8ème Congrès de la Société Nationale Française de Dialyse et Transplantation (SNFDT)

Palais des congrès, Liège

See the entire schedule

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French healthcare network for rare immuno-hematological diseases

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15 Sep

Aujourd'hui a eu lieu la 18ème journée du centre de référence des cytopénies auto-immunes de l'adulte CERECAI.
Au programme : les actualités thérapeutiques dans le PTI et l'AHAI, l'apport de la génétique, sans oublier les actualités sur la prise en charge pédiatrique.

3

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13 Sep

Développement de nouvelles thérapies géniques, de la preuve de concept à la mise sur le marché : Merci à l’AFM-Téléthon, Généthon et Yposkesi pour leurs présentations et à toutes les équipes pour leurs travaux sur les maladies rares 👏

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