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Reference centers for rare diseases
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Pathologies
Primary Amyloidosis And Others Immunoglobulin Deposition Diseases
Bradykinin-Mediated Angioedema
Acquired And Inherited Aplastic Anemia
Acquired And Inherited Aplastic Anemia
Diamond-Blackfan Anemia
Paroxysmal Nocturnal Hemoglobinuria
Fanconi anemia
autoimmune cytopenias
Autoimmune Hemolytic Anemia
Immune Thrombocytopenic Purpura
Evans syndrome
Primary Immunodeficiency
Histiocytosis
Histiocytosis
Erdheim-Chester disease
Castleman disease
Mastocytosis
Thrombotic Microangiopathy
Chronic Neutropenia
LGL Proliferation
Hypereosinophilic Syndrome
Training & research
Medical training
University Diploma “Immuno-hematology and Internal Medicine”
MaRIH’s MOOC
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clinical case quiz
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Guidelines (PNDS)
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Useful documentation for patients
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Post-ASH’journals
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Transition from a pediatric to an adult service
“Rare diseases healthcare networks” Booklet
Medico-social space
Orphanet booklet “Living with a rare disease in France”
Medico-social pathway
Schooling for sick children
Health Info Rights
Professional integration – Maintaining employment for people with disabilities
Departmental House for the Disabled (MDPH)
Right to borrow
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All pathologies
Primary amyloidosis and others immunoglobulin deposition diseases
Diamond-Blackfan anemia
Autoimmune hemolytic anemia
Bradykinin-mediated angioedema
Acquired and inherited aplastic anemia
Primary immunodeficiency
Paroxysmal nocturnal hemoglobinuria
Histiocytosis
Castleman disease
Fanconi anemia
Mastocytosis
Thrombotic microangiopathy
Chronic neutropenia
LGL proliferation
Immune thrombocytopenic purpura
Evans syndrome
Hypereosinophilic syndrome
Maladie d’Erdheim-Chester
Child / adult
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Centre of reference coordinator / Centre of reference constituent
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Pediatric
Centre of reference coordinator / Centre of reference constituent
Competence centre
Associated centre 
Undefined
Adult 
Pediatric