Institutional Partners


Ministry of Social Affairs, Health and Women’s Rights

Ministry of Higher Education, Research and Innovation

National Database of Rare Diseases

Rare Disease Platform

Alliance Maladies Rares
Alliance of patients’ associations in France

Fondation Maladies Rares

Maladies Rares Info Services
A team of professionals will answer your questions on all rare or orphan diseases

The Rare Diseases and Orphan Drugs Portal

Alliance of European Patients’ Organisations


The Association of Interns in Hematology

The Young Internists’ Friendly Society

Research Association for Rare Immuno-Hematological Diseases

Research Association on Hematopoietic Stem Cell Transplantation, Spinal Cord Aplasia and Paroxysmal Nocturnal Hemoglobinuria

Mutual Aid to Bone Marrow transplants