The network

Network presentation

Rare Diseases Healthcare Networks (RDHN) were created following a call for proposals...

Missions

Improvind care Thanks to its visibility (events, leaflets, website), MaRIH should help...

Governance

STEERING COMMITTEE The steering committee convenes every other Thursday and includes a...

Centres de référence maladies rares

Find a specialist

Laboratoires recherche / diagnostic

Patient associations

Anémie de Blackfan-Diamond The AFMBD was set up in 1996. It brings...

Sociétés savantes

Alliance nationale pour les sciences de la vie et de la santé...

Autres filières de santé maladies rares

    Retrouvez le livret "Filières de santé maladies rares" ! AnDDI-Rares...

Partenaires

Partenaires institutionnels Ministère des Affaires Sociales, de la Santé et des Droits...