The network

Network presentation

The Rare Diseases Healthcare Networks (RDHN) were created following a call for...

Missions

Improvind care Thanks to its visibility (events, leaflets, website), MaRIH should help...

Gouvernance

COMITE DE PILOTAGE Le comité de pilotage se réunit une fois par...

Centres of Reference for Rare Diseases

Sorry, this entry is only available in Français. For the sake of...

Find a specialist

Research / diagnostic laboratories

Patient associations

Anémie de Blackfan-Diamond The AFMBD was set up in 1996. It brings...

Scientific societies

National Alliance for Life and Health Sciences http://www.aviesan.fr/ French Society of Bone...

Others French Healthcare Networks for Rare diseases

  Find the booklet “French Healthcare Networks for Rare diseases”! AnDDI-Rares Developmental...

Partners

Institutional Partners   Ministry of Social Affairs, Health and Women’s Rights www.sante.gouv.fr...