Find the booklet “French Healthcare Networks for Rare diseases”!
AnDDI-Rares
Developmental abnormalities intellectual disability of rare causes : www.anddi-rares.org
BRAIN TEAM
Rare motor or cognitive expression diseases of the central nervous system : www.brain-team.fr
CARDIOGEN
Hereditary or rare heart diseases : www.filiere-cardiogen.fr
DefiScience
Rare Diseases of Brain Development and Intellectual Disability : www.defiscience.fr
FAI2R
Rare systemic autoimmune and autoinflammatory diseases : www.fai2r.org
FAVA-Multi
Rare vascular diseases with multisystemic involvement : www.favamulti.fr
FILFOIE
Rare Liver Diseases of Children and Adults : www.filfoie.com
FILNEMUS
Neuromuscular diseases : www.filnemus.fr
FILSLAN
Amyotrophic lateral sclerosis : http://portail-sla.fr/
FIMARAD
Rare diseases in dermatology : www.fimarad.org
FIMATHO
Abdominal-thoracic malformations : www.fimatho.fr
FIRENDO
Rare endocrine diseases : www.firendo.fr
G2M
Inherited metabolic diseases : www.filiere-g2m.fr
MCGRE
Rare constitutional diseases of the red blood cell and erythropoiesis : www.filiere-mcgre.fr
MHEMO
Constitutional haemorrhagic diseases : www.mhemo.fr
MUCO/CFTR
Cystic fibrosis and conditions related to CFTR abnormality : www.muco-cftr.fr
NeuroSphinx
Neurological and sphincter complications of rare pelvic and spinal cord malformations : www.neurosphinx.fr
ORKID
Rare kidney diseases : www.filiereorkid.com
OSCAR
Os-Calcium/Cartilage-Rein : http://blog.filiere-oscar.fr
RESPIFIL
Rare respiratory diseases : www.respifil.fr
SENSGENE
Rare sensory diseases : www.sensgene.com
TETE COU
Rare Diseases of the Head, Neck and Teeth : www.tete-cou.fr