Institutional Partners
Ministry of Social Affairs, Health and Women’s Rights
www.sante.gouv.fr
Ministry of Higher Education, Research and Innovation
www.enseignementsup-recherche.gouv.fr
National Database of Rare Diseases
www.bndmr.fr
Rare Disease Platform
Alliance Maladies Rares
Alliance of patients’ associations in France
www.alliance-maladies-rares.org
Fondation Maladies Rares
www.fondation-maladiesrares.org
Maladies Rares Info Services
A team of professionals will answer your questions on all rare or orphan diseases
www.maladiesraresinfo.org
The Rare Diseases and Orphan Drugs Portal
www.orpha.net
Eurordis
Alliance of European Patients’ Organisations
www.eurordis.org/fr
Associations
The Association of Interns in Hematology
http://www.aihemato.com/
The Young Internists’ Friendly Society
http://www.internistes.org/
Research Association for Rare Immuno-Hematological Diseases
Research Association on Hematopoietic Stem Cell Transplantation, Spinal Cord Aplasia and Paroxysmal Nocturnal Hemoglobinuria
www.agrah.org
Mutual Aid to Bone Marrow transplants
www.egmos.org/